about Resources & Links

A system of care. A community of support.

 

infant with cochlear implant

Families of children who are deaf or hard of hearing often access information and resources to assist them in understanding their child’s diagnosis and making informed decisions for their child and family to access services and support through the EHDI system of care. In today’s digital age, information and resources come from a variety of sources, including internet websites, brochures, books, DVDs/CDs/videos, resource guides and curricula. Many families find reviewing this information in the privacy of their home to be a helpful part of the process of coming to terms with the diagnosis and/or making decisions for their child and

family. This format of information is also helpful in conversations parents have with extended family members such as grandparents, aunts and uncles as well as others. It’s important to consider that not every piece of literature or video resource is completely accurate or devoid of bias. Parents must sift through this information carefully and consider taking questions to their team of providers if further clarification is needed.

The greater community serves as an excellent resource to families by assisting them in accessing relevant information and resources to support their journey in raising their child. The following web-based sources of information and resources may be helpful to you as a community member, EHDI provider, extended family member or a parent of a child who is deaf or hard of hearing.

NATIONAL

American Academy of Audiology

The American Academy of Audiology is the world’s largest professional organization of, by, and for audiologists. The active membership of more than 12,000 is dedicated to providing quality hearing care services through professional development, education, research, and increased public awareness of hearing and balance disorders. The Academy’s accomplishments and ongoing innovations are categorized into 5 distinct areas: leadership, advocacy, education, public awareness and leadership.

Hands & Voices

Hands & Voices is a national and international non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. The Hands & Voices website hosts a wide variety of resources and information for families, professionals and the greater community including communication considerations, resources guides, products and videos, advocacy, parent-professional collaboration, technology, Deaf people and perspectives and family support.

Center for Disease Control and Prevention

The Center for Disease Control and Prevention (CDC) hosts a wide array of resources and information for families, providers and the greater community to assist families navigating the early hearing detection and intervention process in their state.   Their website includes information on the facts of early childhood hearing loss including prevalence, causes, and prevention, newborn/early childhood screening and diagnosis, treatment options as well as free materials for providers and families. The CDC is committed to hearing loss surveillance, research, and health education. Their goal is to help children reach their full potential.

My Baby’s Hearing – Boys Town National Research Hospital

Boys Town National Research Hospital sponsors this national website. The team contributing to the development of this website includes audiologists, speech-language pathologists, teachers of the deaf, geneticists, doctors and parents of deaf and hard of hearing children. The website includes information for families and professionals detailing newborn hearing screening; hearing, audiograms and amplification; language and learning, causes of hearing loss, and next steps. This site is available in English and Spanish.

American Society for Deaf Children

The American Society for Deaf Children (ASDC) is a relevant source of information for people who must make decisions about deaf children: providers, educators, legislators, and advocates. ASDC believes that parents of deaf children have the right to make informed decisions on behalf of their children, benefit from meeting other parents of deaf children as well as members of the deaf community from a variety of backgrounds, experiences, and philosophies. ASDC believes that deaf children have the right to be valued and respected as whole children capable of high achievement, regardless of their degree of technology use, meet, socialize and be educated with other deaf children, achieve fluency reading and writing English, and to the extent of their ability, speaking English. ASDC believes that medical, audiology, and educational professionals serving deaf children and their families have a responsibility to be informed about the successes of deaf persons from all walks of life, including those who use American Sign Language, as their primary language and those who do and do not use cochlear implants, recognize the benefits of early language, including sign language, and work to ensure that deaf children’s language development, whether signed, spoken or both, progresses at a rate equivalent to that of their hearing peers.

American Speech-Language-Hearing Association

The American Speech-Language-Hearing Association (ASHA) is committed to ensuring that all people with speech, language, and hearing disorders receive services to help them communicate effectively. Their website hosts resources to help interested community members understand communication and communication disorders. In addition, ASHA serves as a national resource and professional learning community for audiologists and speech-language pathologists across the country.

American Academy of Pediatrics

In 2001 the American Academy of Pediatrics (AAP) implemented a program, Improving the Effectiveness of Newborn Hearing Screening, Diagnosis, and Intervention through the Medical Home, which focused on increasing the involvement of primary care pediatricians and other child health care providers by linking follow-up services more closely to the newborn’s medical home. As part of EHDI and this program, the AAP has worked to identify one pediatrician in each state/chapter to champion this cause. Since 2001, more than 60 chapter champions have been identified and are actively participating in the program at the national and state/chapter levels. The AAP’s website includes detailed information about loss to follow-up, fact sheets, publications, resources and tools primarily geared for medical providers however parents, EHDI providers and the greater community may benefit from this information as well.

John Tracy Clinic

John Tracy Clinic (JTC) provides worldwide, parent-centered services to young children (ages 0-5) with a hearing loss offering families hope, guidance and encouragement. JTC is a diagnostic and education center for young children with hearing loss. They are the largest private provider of services to families with young children overcoming hearing loss in the world. Their renowned audiology, education and support services have garnered international attention and praise. They serve more than 25,000 families each year. Their website includes information on hearing health, services, distance learning opportunities for parents, and an ideas and advice blog.

Listening and Spoken Language Knowledge Center

The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society. The Alexander Graham Bell Association for the Deaf and Hard of Hearing is a 501(c)(3) nonprofit organization.

National Center for Hearing Assessment and Management

The National Center for Hearing Assessment and Management (NCHAM) serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems. As a multidisciplinary Center, their goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention. Their website hosts a wide variety of information for parents, EHDI professionals, state and government employees, community members, state legislators, and other key stakeholders who have a vested interest in improving the lives of children who are deaf or hard of hearing.

Oberkotter Foundation

The work of the Oberkotter Foundation has always been driven by the Trustees’ passionate belief that all children who are deaf or hard of hearing should have the opportunity to reach their full potential. The Oberkotter Foundation focuses its efforts on supporting families who have chosen listening and spoken language for their child and on opportunities for children learning listening and spoken language to develop their social, emotional, language and educational skills. Their website includes information on Oberkotter’s Family Engagement and Outreach and Professional Learning initiatives.

STATE

Educational Resource Center on Deafness

The Educational Resource Center on Deafness (ERCOD) website provides information and resources professionals and families of children with hearing loss, birth to 22. Materials, information, and interactive support are available online.

Parent Companion First Five Years

This website serves as a guide for Texas Parents and caregivers of children diagnosed or suspected disabilities from birth through 5 years of age.

Texas Connect

Texas Connect is an unbiased non-commercial internet resource for parents of children with hearing loss. The Guide includes parent to parent stories parents that may help answer some questions parents might have about their child’s future. The Guide also explains important terms and definitions related to hearing, communication, and services. In order to understand what their child is going through it is important parents know the proper definitions for any new terms they might encounter. The Guide includes information on what steps are taken to properly identify and diagnose their child’s hearing loss, includes answers to frequently asked questions and includes direct links to dozens of national, educational, state, and Internet-based resources. These resources allow parents to become more knowledgeable about everything from sign language to the Texas Tuition Waiver. Texas Connect is accessible in Spanish as well.

Texas Academy of Audiology

The mission of the Texas Academy of Audiology is to serve audiologists and individuals with auditory and balance disorders by promoting excellence, ethics, and education. The Academy’s fundamental objectives are to advance the excellence of audiology services, the highest ethical standards of practice and conduct for audiologists and the preeminence of audiology as a profession through outstanding educational programs for audiologists and the public. Their website hosts information primarily for audiologists however parents and interested community members may benefit from reviewing their information as well.

Texas Early Hearing Detection and Intervention Program

The Texas Early Hearing Detection and Intervention (TEHDI) Program oversees the state’s newborn hearing screening program. Their website provides information and resources to families and professionals related to hearing screening and follow-up care.

Texas Hands & Voices

Texas Hands & Voices (TX H&V) offers support, information and resources in an unbiased manner to families with children who are deaf or hard of hearing. Their outreach activities, parent/professional/community collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing children to reach their highest potential. Their website includes information on education, technology and services, and funding assistance for hearing aids and cochlear implants.

Texas Speech-Language-Hearing Association

Texas Speech-Language-Hearing Association (TSHA) is a professional membership organization and a recognized resource in Texas for speech-language pathologists (SLPs), audiologists, the citizens of Texas with speech or hearing disorders (consumers), and students of speech-language pathology and audiology. Speech-language pathologists and audiologists are highly educated professionals who provide critical, life-changing help for hundreds of thousands of Texans of all ages and from all walks of life. Their website includes information on continuing education, advocacy, public policy, publications primarily for audiologists and speech-language pathologists however this information may be of interest to parents and the greater community. TSHA hosts an annual convention that is open to audiologists, speech-language pathologists, educators, state and local agency representatives, parents, and interested community members.